Sunday, July 12, 2009

Updates-Friday, Saturday and Sunday (07-10/11/12)

Sunday, July 12, 2009

Lazy Sunday....

Tucker is resting today nicely. We have increased his sedation so they could possibly try to raise the paralysis tonight or tomorrow again. That is about all that has changed today. The usual new iv's, tweeking of the fluids...that kind of stuff is always going on but nothing other than that.

I started a new book by James Patterson. (thank you mom) The library isn't open on the weekends so I was unable to go and get the 4th Twilight book to read....maybe tomorrow I will go. (gotta read about the wedding being planned--heard #4 is the best of all of them so far) I know Sheena and Alisha will be very proud of me getting as far as I have on them.

I talked to my mom today, I talk to her every day but today I got to put in a request for a package with date-fill cookies and some donuts. She is at Gram Peters house, her mothers house, in up state NY...Gram makes the best donuts!!! (Hi Gram) So I will definitely be looking for that package soon...too bad she couldn't throw in some cheese curd as well (hint hint) Love you mom!!!!

SO, I don't want to jinx it but......quiet day. Todd went to see the tall ships that were in the harbour today so I will post pictures of them later.

Saturday, July 11, 2009

and so it goes....

The balance of very fragile. From overload to too dry in 2 seconds.

Today didn't stay quiet as we had hoped. Tucker decided to have another episode, this time we believe it to be attributed to him being TOO DRY......we had great pee over the past few days and it very quickly turned on us. The only good thing that came of it is that we were taken off the high frequency ventilator and put back on the other one. He is doing well after his blood transfusion and some pushed i.v. fluids. So, as we can all predict now, he will have a wet x-ray once again in the morning. Probably not as bad as the last episode because he was too dry to start but wet nonetheless.

We had him blessed again tonight. It was awesome to hear them say "there are so many prayers out there for him. The love that people have for Tucker, even strangers, Heavenly Father knows." I am a firm believer in the power of the Priesthood and healing of the sick. Tucker is a true testament of that healing power.

Please continue to keep Tucker in your prayers. Thank you everyone again, I cannot say thank you enough, for taking Tucker and our family into your hearts and homes.

We miss you......

OH how we miss our Tucker boy!!!! It has been two weeks since we saw a true sign of our little man. At times we cant help but cry and think we did the wrong thing here......emotions are edgy and high.
Another quiet day here, nothing being changed.

Friday, July 10, 2009

OK....I know you have been waiting.

Nothing new today. Tucker pee'd out over a liter yesterday after measures were taken to correct the fluid overload. They continue to pull fluid now as well. He has tolerated the new machine, which by the way sounds like the paint mixer at the local hardware store. He is down to only 40% oxygen added to the machine to keep his sats at 95-100%. (we were at 100% oxygen on the machine and only having sats at 85-88 before all the fluid was lifted off him) By the way, when I say SATS, that is oxygen saturation in his blood stream. He should, now with the repair, be 100% like you and me. Before he ran around 75-80 percent which caused slow healing and his purple coloring.

Todd and I got out for a while since everything was pretty much the same here at the is amazing how tired we get we have noticed. After sitting most days and just getting up to move positions or go down to EAT-which seems to be our favorite pastime, our bodies are feeling the weight.

Tomorrow we are having a visitor, Michele and a friend. Other than that we plan on being at the hospital and chilling out. Maybe finish the 3rd book of the Twilight series....

Thursday, July 09, 2009

Thank you.....

I am exhausted and so is Todd. I think Alisha hit it on the head, everything that happened and is continueing to be watched and adjusted every minute, every hour to ensure Tucker recovers.

So...on that note. The request for pictures. Not exactly what you had in mind but I wanted to take a picture of our Wall of Love.....these are pictures from Tuckers friends at NEEC... (hey guys!!! we love you). We have received cards, a few care packages (thanks Kim for the razors) and an awesome picture of Tucker's entire school. (zoom in and you will see it) What love we have for everyone....thank you so much for your support , prayers and thoughtfulness.

Send me a picture, colored or other wise....I will decorate Tuckers room with them. Afterwards everything is going into a scrapbook of OUR WHOLE HEART JOURNEY.

William "Tucker" Bryant
c/o Boston Childrens Hospital
300 Longwood Ave
Boston, MA 02115
CICU, 8th Floor, Room 27

(this is Tucker on the new ventilator...sounds like a McDonalds fry machine when it rings off)

1 comment:

kiddiescorner said...

Just wanted to let you know I am praying daily for him. Haven't seen any updates so just wanted you to know I'm thinking about him