Tuesday, August 11, 2009

Day 8 Off The Vent

Good Morning Tucker fans! Tucker is doing well these last few days. He's been working to be off the CPAP mask each day and has been improving. They are now working to get him off the mask for one hour at least three times a day.

Little pieces of Tucker are slowly coming back. His smiles, his words, and his signs. He's sitting up more and trying to pull himself out of bed. lol! Strong little man!

Mommy and Sister had to make a trip back home for a couple of days to get some things in order for the school year. Daddy is with Tucker in Boston and taking very good care of him. It's hard to believe that Tucker and his family have been living in the hospital almost 2 months. Hopefully, they will be home soon.

Tucker was able to have his teeth cleaned and his hair washed on Sunday. I think he was very happy! There were smiles all around.

They were also able to get some video of the little man! He's so cute and I am so glad to report he's doing well.

And finally, I want to leave you with an excerpt from Karen.

"I have been in this hospital long enough to make a lifetime of friends and tonight I say good bye to one. I am heading home and when I return she will be gone...home to a different life than she had expected, home as a different person. Heart moms (dads too) live a life of uncertainty and more often than we want, a life of heartache. Tonight I got to see an angel...laying perfect in his bed, breathing over a ventilator that he will never come off. His mother standing proudly beside him knowing what a fight he has fought, knowing that he will not win. I cannot even imagine the emptiness. I, as many of you heart moms probably, have planned a funeral for my son several times in my head, with the what ifs, could I continue, who would be there, how would we do it......but I couldn't until today FEEL a little bit of what it would do to me. I love this family....they have been through a lot of what we have....and I am so very sad."

Please keep this family in your thoughts and prayers. And keep those good vibes coming for Tucker. He's come so far and I can't wait to see him home, running in the yard and enjoying himself.

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