Tucker had a great night of sleep, (so did dad). He fell asleep around 7:30 p.m. last night and I thought he might wake up in the wee hours of the night, but he didn't. He would move around a bit to get comfortable, but he slept from 7:30 to about 4:30 this morning. Nine hours, wow!!! I was able to get a few more hours of sleep than usually. I have been sleeping in the room with him and all the alarms keep me awake, so good sound sleep hasn't happened in a while. Once we woke up, we got dressed and around 9 we went for a walk to the garden. Made a couple of laps around it and came back inside. It was starting to get hot and humid so we didn't want to risk anything. We came back up to our floor and made a few laps around the ICU and said our "Hi's" to everyone. He has really been full of energy this morning. Must be a sign we are getting better. We are now in the room and Tucker is getting settled in for a nap.
Just finished speaking with the Doctors. They are very happy with his progress. The plan is to keep him of of the bipap mask all day, including naps, and only put it on at night when he goes to sleep for the evening. We are also weening down on the amount of oxygen and on the adivan from 7 to 2.6 milligrams. Progress!!
The video shows him sitting in his bed watching his t.v.. Watch his left hand and he waves hi to everyone.
Tucker was born in 2005 with Down Syndrome and a heart defect called Hypo-plastic left heart(half a heart/left side not working). He has undergone two heart surgeries, one when he was just 17 days old. His parents have found a surgeon in Boston that can repair his heart and give him the hope of a very active life. This site has been put into play to help that family get to Boston, to offset cost for travel, room and food while they are there. The surgery is schedule for April 13, 2009. Thank you for helping us with our JOURNEY TO A WHOLE HEART.
Every time I close my eyes I say a little prayer. Doctors’, nurses with my son Please take great care, For as you see his little heart Is in need of grave repair. Bless my son to have the strength, This battle he will win. For as he fights for his life, We are on our knees again. This son of ours, our miracle, Has gone through so much. He is our gift from above, Our lives he has touched. Every time I close my eyes I say a little prayer. Thank you God for this boy, A son all our own. And oh how grateful we are now, To see how he has grown.
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